Tuesday, December 11, 2012

Lily Kate's 24 hour EEG and updates

So 2 weeks ago Lily Kate had a 24 hour EEG. An EEG is when they hook up a million wires to your head to determine if there is seizure activity during an allotted time period. Since she had 1 seizure I requested to get a 24 hour EEG just to make sure she wasn't having them during her sleep. Lily Kate did fine although she was pretty uncomfortable. They also had a video on her the entire time so they could see what she did if she were to have a seizure. See pics below.
We won't get the results back until December 17. Lily Kate also has another brain MRI on that day. We are getting it done now so that we can send it off to the specialist (Dr. Bill Dobyns) in Seattle for our upcoming appointment. Dr. Bill Dobyns discovered this particular brain malformation and link to the DCX gene. We have waited for months to get to see him and we finally got an appointment for February 11. So we will be traveling to Seattle to find out more about her diagnosis. He will be able to give us more information about her exact diagnosis and prognosis. We've heard he is very "by the book without much empathy." So please pray for us as we approach that appointment. We are asking the Lord to prepare our minds and hearts and also to completely change her brain scan to show a brain way more developed and even healed if the Lord so chooses. Trusting HIM. Love, Theresa

2 comments:

  1. My prayers are with your adorable Lily Kate!♥

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  2. Always praying for Lily Kate and your family. Big hugs and lots of love!

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