We finally found a great doctor that's not too far away. His name is Dr. Dave Clarke. He's in Austin at Dell Children's Hospital. He is brilliant. He is an epileptologist, which is a neurologist that only specializes in epilepsy. He gave us great hope and said that if or when Lily Kate has more problems we will never give up and just let her seize. He said that if the medications can't give her good control then there are brain surgeries that can help. Hopefully this will never be an issue, but according to her diagnosis it will be. I can't help but to fear my daughter's future. While other parents dream about what their children will do or be one day, I get to bite my nails and wonder when my daughter's seizures will start and how horrible they will be. Will she regress? Will she have to stay home from school because of them? Of course this is my fear talking. Something I continually struggle with. Here's Lily Kate with Dr. Clarke.
Lastly, we had a pretty bad week a couple of weeks ago. Lily Kate randomly got a really high fever which we later found out was a virus. I was alternating Advil and Tylenol but not close enough together. Her temperature got up to 104.1 and she had a 4.5 minute seizure. It was horrible. We called the doctor on call and he told us that it happened because she's more susceptible to seizures when she has a fever. Scared me to death but thank God she's ok.
Lily Kate is still not walking but working on it. She's getting really heavy so I hope she begins soon. Its amazing seeing a "typical" 17 month old walk. I just ache seeing the struggle my daughter has each day just balancing. And these other kids just walk so easily. Its not fair. But she is special and unique and one day this will all make sense. Until then please continue to pray for her development and protection and for me to cope better. Here's a video of her at therapy learning to walk.
